One client’s experience: practical support

Jay is a 38 year-old man who developed epilepsy as an adult. He has a hard time controlling his seizures, and as a result he was afraid to leave his house for fear of having a seizure and not having help available.

A Community Facilitator (CF) met with Jay in his home to talk about his situation – his likes and dislikes, his interests and what holds him back from engaging in community life.

Jay said that he would like to get back into work again, but the first step for him would be to build confidence in leaving the house. The CF helped Jay to get an epilepsy card through Epilepsy Action, which Jay can carry in case someone finds him having a seizure.

epilepsy action

The CF also suggested a nearby befriending group and helped Jay work out a safety plan with them: he will call the group to let them know he is coming, and if he does not arrive within an hour they group knows to notify the authorities that he has had difficulty along the way.

Having a safety plan helped Jay feel more confident in leaving the house. He asked about community gardening groups, and is now talking to Voluntary Services Lewisham about volunteering with them as well. Often the first step is the hardest, as Jay found.